“There is always one moment in childhood
when the door opens and lets the future in.”
Graham Greene.

In The Beginning

[This article originally appeared in Kidscope, the OC Foundation newsletter for children, in January of 2001]

In the beginning…

Summer was here, that glorious time when school was a distant memory and endless days of sun and sand lay ahead: September and the return to books and rules, a vague discomfort somewhere over the horizon. At 10 years old I was the oldest of the summer kids; the children of several families who’s vacations would overlap. Summer friends. We spent those slow summer days doing those things that children do. Exploring the beach and the woods, building forts and tree houses and swimming: always swimming. Swimming in the cold waters of the big lake until the chill became too much, we would run back up the beach to burrow into the hot sand. The sand warming from below the sun from above, a cocoon of warmth that soon drove the chill from our bodies. You could feel the water evaporate from your body in the wind with a shiver. At times you would feel the sting of sand kicked along by the wind. Always wind and always the sound of wind, the waves rolling on shore, the leaves in the birches and the ash trees playing harmony: The cries of the gulls as they slid on the currents of air, a counterpoint. Running back into the water our yells joined those of the gulls. Perfect memories.

In the late afternoon we would climb the steps from the beach to the house. Along this part of the shore time and wind had piled sand into dunes that had gradually been grown over. Cedar, pine and ash roots held the banks in place. The few houses along the shore were built at the top. Up above was a different world of woods and fields with postcard views of the lake. Changing from our swim suits into our clothes we would feel that wonderful feeling of cloth against our skin, that one feels after a day of running in the wind on the sand and playing in the water. A warm feeling of comfort, safety, and contentment.

It began during one such day. It was after dinner, I was still feeling that secure comfortable feeling of my clothing. I was sitting on the hearth, in front of the fire, toasting marshmallows. The adults were behind me talking about whatever it is that adults talked about as I watched the marshmallows turn a golden brown and did my best to keep them from catching fire while thinking about the almost too sweet taste. Life was good, I was happy and the world was full of possibilities and then, in one brief moment the world changed, one of the adults behind me made a comment to me. They said, “You look like Satan sitting there.” It was an innocent comment and funny at the time, the marshmallow fork did indeed look like a small pitchfork.

As I sat there watching the toasting marshmallows and the fire I started to think a little about Satan and hell and eternity. At that moment, for the first time in my life, I felt the cold frozen feeling of the beginning of an obsession. I didn’t know what it was but as I sat there contemplating eternity, an eternity in hell, I felt that fear, that living fear, which was to become my constant companion. It started small, Hell is a frightening thing to think of, and I thought about all those things the nun’s had taught me about hell. And then I started thinking about eternity. Eternity, on and on with no end, forever, that thought was even more frightening. No end? I couldn’t get a handle on that, I couldn’t understand it and it terrified me. Then I started thinking about heaven and eternity and I felt the same fear. The fear grew as I thought, “What if I went to hell and my mother didn’t?” Or if someone I loved went to hell and I went to heaven? Within minutes my safe secure world was gone and I was trapped in this nightmare that I couldn’t find my way out of. The thoughts just kept going around and around. I didn’t sleep that night, I couldn’t.

The next day was another beautiful summer day, just like the day before, and I did all the things we did on those summer days, but the thoughts were there. I could push them back while playing but if I stopped for even a moment, I could feel the cold of the fear. That night, as I lay in bed, the nightmare was alive and growing. I could not stop the thoughts and that frightened me.

That became the pattern of my life; I would be Ok during the day but was always in this shadow, at night as I lay in bed the terror took over. Soon I began to fear going to bed. Eventually I was able to find some relief, momentary and fleeting, in going to church and to confession. Though now I feared heaven as much as hell. If I had no choice about eternity, I thought, then better heaven then hell. Night after night I prayed the rosary. If I didn’t pray I would not get to sleep. I had to be good enough to get to heaven. I tried, for endless hours to think my way out, to use logic but those concepts were too big, too imperfectly understood by my 10-year-old mind for that to work but I found comfort in trying. Trying to think my way clear became part of the ritual. Prayer and thinking, night after night and filled with a fear that even then I knew was not normal. That something was wrong, that something was wrong with me. I couldn’t bring myself to talk with anyone and suffered this alone and in silence. If only I could think the right thoughts I would be Ok. After a full year of this it stopped as suddenly as it had started.

That is my first clear experience with what I would learn decades later was OCD. It would return and go again several times over the next few years, sometimes it was the same and sometimes it was other thoughts but always with this cold deadly anxiety. Today those ruminative, primarily obsessional, type problems still come and go. The OCD I live with now is, for the most part, the classic contamination/washing type and that is always with me. My OCD is severe and so far treatment has not been successful in reducing my symptoms to any great degree, though I continue to try and do have hope. But the knowledge that these strange thoughts that I can’t get rid of are OCD, that it is something has been a great help. And knowing that I am not alone with this disorder has been a wonderful source of comfort.

The content in this post is mirrored from my original OCD site here;

“I also saw the awful agonies that Tantalus has to bear. The old man was standing in a pool of water which nearly reached his chin, and his thirst drove him to unceasing efforts; but he could never get a drop to drink. For whenever he stooped in his eagerness to lap the water, it disappeared. The pool was swallowed up, and all he saw at his feet was the dark earth, which some mysterious power had parched. Trees spread their foliage high over the pool and dangle fruits above his head –pear-trees and pomegranates, apple-trees with their glossy burden, sweet figs and luxuriant olives. But whenever the old man tried to grasp them in his hands, the wind would toss them up towards the shadowy clouds.”

[Odysseus. Homer, Odyssey 11.584]

Isolation

Lately, I’ve been thinking a lot about the isolation that can come about from living with OCD.

For many of us with severe or extreme symptoms, we live locked in our own worlds and rarely, if ever, venture out.

I have gone through lengthy periods where I almost never leave my apartment unless absolutely necessary. My primary “social” contacts were through this computer. That is a very lonely existence. Having this computer, and what it could bring me in terms of contact with others, was really a two-edged sword. While it relieved some of the isolation, it also enabled the furthering of my physical isolation by giving me enough that I didn’t have much motivation to seek out “skin on” or 3D contact. There were actually times where I had no physical contact, no matter how slight, with another human being for months at a time. That is an exercise in deprivation I don’t recommend to anyone. After that length of time without any touching, a simple handshake becomes a powerful sensual experience. I think it is true that we actually need physical contact with other people.

It was after just such an experience that I realized that I had to get out and interact with the world no matter how much anxiety that produces. I had stopped living and was reduced to just existing. And that lets the OCD win. I cannot allow that. So out I go. And yes, it produces anxiety – every time. But it is preferable to being that alone.

One of the things I did to make getting out more doable was that I found an activity that was something I once enjoyed. I have discovered I still do. And since it involves other people, it, of course, triggers off my OCD on a regular basis. That’s difficult but it is not the hardest part. For me, the hardest part is my perceived and continuing isolation and feelings of being separate.

I watch the people I am around going about everyday things without thinking. Simple things, like sitting in a chair without checking it out, deciding if it is safe, not having the thought enter their mind. I watch them with their casual touching of one another, apparently without much notice. I watch them walk across a room without being cautious about where they step, not even being concerned. I spend my time hyper alert, always being aware of what every part of my body is touching, of where everything and everyone is and what they have touched. And I am so envious. What it must be like to live that free. And most of them have no idea of what a gift that level of unawareness is. How free they are to not live in this nightmare world that I see all around me. Everything I want is embodied in that freedom. And it is just there, in front of me and infinitely far away. Tantalus in his pool understands. (see the quote above)

There was a time in my life, long ago, when I lived that free. And the constant exposure to what I no longer have produces an ongoing sense of loss, even grief; for all that I have lost and for all that will never be. I am separate, separated from life by irrational fears, a product of a disordered biological process beyond my control. This is what I find the most difficult.

I keep going out there. I have made a new friend or two. And some days, I am less aware than others of this feeling of separation, this isolating process in me. There is improvement; life does seem closer at times. I don’t know if this feeling of isolation will ever really pass. But the alternative, true isolation, and being totally alone is certainly worse. And in reality those other people do not see me as separate though, perhaps, they do see me as a bit idiosyncratic.

So I continue to try and grab as much as I can each day and try not to think about more then that. Some days I can and some days I can’t. And I have bad days and dark nights with depression a close companion. But I have good days too. If all I look at is what I don’t have and will never have then I will not make it. I will give up and that thought frightens me. I don’t want to live the rest of my life alone and the only way to do that is to not isolate and deal with all the fears, feelings and concerns that brings up as they come up. It is work but what is the alternative?

Just some thoughts. Wednesday, May 24, 2000

The content in this post is mirrored from my original OCD site here;

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