“There is always one moment in childhood
when the door opens and lets the future in.”
Graham Greene.

In The Beginning

[This article originally appeared in Kidscope, the OC Foundation newsletter for children, in January of 2001]

In the beginning…

Summer was here, that glorious time when school was a distant memory and endless days of sun and sand lay ahead: September and the return to books and rules, a vague discomfort somewhere over the horizon. At 10 years old I was the oldest of the summer kids; the children of several families who’s vacations would overlap. Summer friends. We spent those slow summer days doing those things that children do. Exploring the beach and the woods, building forts and tree houses and swimming: always swimming. Swimming in the cold waters of the big lake until the chill became too much, we would run back up the beach to burrow into the hot sand. The sand warming from below the sun from above, a cocoon of warmth that soon drove the chill from our bodies. You could feel the water evaporate from your body in the wind with a shiver. At times you would feel the sting of sand kicked along by the wind. Always wind and always the sound of wind, the waves rolling on shore, the leaves in the birches and the ash trees playing harmony: The cries of the gulls as they slid on the currents of air, a counterpoint. Running back into the water our yells joined those of the gulls. Perfect memories.

In the late afternoon we would climb the steps from the beach to the house. Along this part of the shore time and wind had piled sand into dunes that had gradually been grown over. Cedar, pine and ash roots held the banks in place. The few houses along the shore were built at the top. Up above was a different world of woods and fields with postcard views of the lake. Changing from our swim suits into our clothes we would feel that wonderful feeling of cloth against our skin, that one feels after a day of running in the wind on the sand and playing in the water. A warm feeling of comfort, safety, and contentment.

It began during one such day. It was after dinner, I was still feeling that secure comfortable feeling of my clothing. I was sitting on the hearth, in front of the fire, toasting marshmallows. The adults were behind me talking about whatever it is that adults talked about as I watched the marshmallows turn a golden brown and did my best to keep them from catching fire while thinking about the almost too sweet taste. Life was good, I was happy and the world was full of possibilities and then, in one brief moment the world changed, one of the adults behind me made a comment to me. They said, “You look like Satan sitting there.” It was an innocent comment and funny at the time, the marshmallow fork did indeed look like a small pitchfork.

As I sat there watching the toasting marshmallows and the fire I started to think a little about Satan and hell and eternity. At that moment, for the first time in my life, I felt the cold frozen feeling of the beginning of an obsession. I didn’t know what it was but as I sat there contemplating eternity, an eternity in hell, I felt that fear, that living fear, which was to become my constant companion. It started small, Hell is a frightening thing to think of, and I thought about all those things the nun’s had taught me about hell. And then I started thinking about eternity. Eternity, on and on with no end, forever, that thought was even more frightening. No end? I couldn’t get a handle on that, I couldn’t understand it and it terrified me. Then I started thinking about heaven and eternity and I felt the same fear. The fear grew as I thought, “What if I went to hell and my mother didn’t?” Or if someone I loved went to hell and I went to heaven? Within minutes my safe secure world was gone and I was trapped in this nightmare that I couldn’t find my way out of. The thoughts just kept going around and around. I didn’t sleep that night, I couldn’t.

The next day was another beautiful summer day, just like the day before, and I did all the things we did on those summer days, but the thoughts were there. I could push them back while playing but if I stopped for even a moment, I could feel the cold of the fear. That night, as I lay in bed, the nightmare was alive and growing. I could not stop the thoughts and that frightened me.

That became the pattern of my life; I would be Ok during the day but was always in this shadow, at night as I lay in bed the terror took over. Soon I began to fear going to bed. Eventually I was able to find some relief, momentary and fleeting, in going to church and to confession. Though now I feared heaven as much as hell. If I had no choice about eternity, I thought, then better heaven then hell. Night after night I prayed the rosary. If I didn’t pray I would not get to sleep. I had to be good enough to get to heaven. I tried, for endless hours to think my way out, to use logic but those concepts were too big, too imperfectly understood by my 10-year-old mind for that to work but I found comfort in trying. Trying to think my way clear became part of the ritual. Prayer and thinking, night after night and filled with a fear that even then I knew was not normal. That something was wrong, that something was wrong with me. I couldn’t bring myself to talk with anyone and suffered this alone and in silence. If only I could think the right thoughts I would be Ok. After a full year of this it stopped as suddenly as it had started.

That is my first clear experience with what I would learn decades later was OCD. It would return and go again several times over the next few years, sometimes it was the same and sometimes it was other thoughts but always with this cold deadly anxiety. Today those ruminative, primarily obsessional, type problems still come and go. The OCD I live with now is, for the most part, the classic contamination/washing type and that is always with me. My OCD is severe and so far treatment has not been successful in reducing my symptoms to any great degree, though I continue to try and do have hope. But the knowledge that these strange thoughts that I can’t get rid of are OCD, that it is something has been a great help. And knowing that I am not alone with this disorder has been a wonderful source of comfort.

The content in this post is mirrored from my original OCD site here;

Hi my name is “Tammy” and I do believe I have obsessive compulsive disorder as well as general anxiety disorder.

I remember as a small child I was continually preoccupied with weather or not we had enough food in the house, if we were running low on something I would stress until my mother replenished the supply. This still holds true 25 years later. I can not run out of any household supplies or I feel overwhelmed. I also have an obsession with fire I am 28 years old and have never lit a lighter or match. I remember whenever my mother would have a small grease fire on the stove, I would run out into the street to get away from the fire. I would not return until I was certain that the fire was out. While a teenager I remember never being able to fall asleep until my father woke up, I was prone to stay up and fire watch to keep us all safe. My obsession with fire has somewhat subsided, only due to the fact that I control my house environment with four smoke alarms, a CO2 detector, and fire extinguishers. And even though I know in my mind that is plenty my instincts tell me I need more.

My other obsession is with death. Everyday I am plagued with thoughts of death, that of loved ones and/or myself. I vision how I, as well as others, would cope. I can’t shake the feelings of sorrow and no matter how hard I try I can’t seem to rid my head of these thoughts. I am sick. I worry continually about the actions I am taking as if they are my last, or someone I care abouts last. I never want to end anything on a bad note, for fear that I may never see them again due to death. I perform ritualistic tasks so that every time I leave everything will be constant. People think I am crazy. Am I? I also have doubt in myself, did I remember to lock the door? I can not rest until I get up and check my self every time the though enters my head, I feel that if I do not check this time it would be the time that I should have. The same goes for the stove, the water supplies in the basement, saying my prayers and thanking the Lord. If I think it I must do it, or it consumes me.

I am afraid of driving and every day my fear gets worse. I am afraid of having an accident, hurting someone else or hurting myself. I hardly drive now as a result and I have to be drove to work for two reasons the fear of driving and the ritual to keep things the same. When I do drive I am on edge afraid to do anything but drive straight. Turns, merges, lane changes bring on panic and the shakes. If by rare occasion I do drive I am afraid to take passengers for fear of getting them hurt in an accident. I also fear of making mistakes and not being perfect. It effects me because I try so hard at everything I appear clumsy. It is that I am only trying to do it as fast and perfect as possible so that I please people. My relationships have failed because I loved too much, and I now seek to get help and control from the monster within me, so I can regain my life. I want it back. And I hope it is not too late. I don’t know if my loved ones understand. They tease me and say I am nuts, if they only knew how close I am to that. They would eat their words.

I also have general Anxiety Disorder, I can’t stop planning everyday tasks. Not while visiting friends and family, while working, resting, relaxing or sleeping. The everyday routines hang in my thoughts. I plan out even the smallest details, and think about the what if’s. I plan for them too. I worry about stuff that the normal person would just do or not do. Dishes, dusting, making the bed etc., etc. all while working a full time job, I force myself to stay on top of all of this, to the point that I never get time to myself, because I never have enough time to squeeze everything in so it gets pushed off on to the next day and then with even more stuff to do I am even more stressed out. This cycle never ends I am never done! Everyday it is something.

I have not turned to illegal drugs or alcohol yet, I have no addiction there, I have started taking Paxil but it is too soon to tell if this will help, I do feel better and I need to get on the right track to recovery.

The content in this post is mirrored from my original OCD site here;

Hi

I’m not sure where to begin. It all began in 1997 when we moved. I had my first “attack” of anxiety. It came on so quickly I didn’t even know what it was. I suddenly was very afraid of dying and would imagine a funeral (my own) which would just make the anxiety worse. It felt like an impending doom sort of thing…like something really bad was going to happen and I would die as a result. They subsided quickly and I never gave them another thought. I just figured it was due to having a baby and a move and a job change. (The move was from Ohio to Florida) I began to build my life.

We built a house. I found a good job teaching at a private school. As I was driving to work on Jan. 21, 2000, I had a terrifying intrusive thought of suffocating my son with a pillow as he slept. This sent me into the worst panic attack I’ve ever had. I got to work and couldn’t pull myself together. I just kept thinking, “where did this horrible thought come from, and why can’t I stop thinking about it?” “What is wrong with me?” I was so embarrassed and terrified. I went to the dr. and was diagnosed with anxiety/depression. Before the attack my husband even noted something was wrong…I was moody, unpredictable. I didn’t tell a soul about the thought b/c I was sure they would lock me up and throw away the key. I then began to fear going to jail and obsessing about life in prison. I didn’t even tell the dr. until my follow-up visit. I went 3 days before telling anyone and lived in my own silent hell of anxiety and panic. I missed work. I couldn’t sleep. I couldn’t eat. I was afraid that the thought would be carried out by myself–that somehow I would lose control and actually do it. This terrified me even more–and then I began obsessing about it and trying to get it to go away.

I am on a long road to recovery and discovery about myself. I am involved with a self help program called “Attacking Anxiety and Depression” by Lucinda Bassett. It has changed me–literally. I am not the person I was before the attack. I am getting better, but I still struggle sometimes. Some nights are ok, others are not, as tonight I am writing this at midnight. My husband works 3rd so I’m here alone with my son at night. This is when the anxiety is the worst. I have to do deep breathing and talk to myself. I am not a violent person. I love my son more than life. Why does this thought have so much control over me and why can’t I just make it go away….it’s almost as if you are dreaming except you are awake. You have no control over the thought process–just like you don’t have control over your dreams while you sleep.

I wanted to share my story b/c I am still learning more about myself. I have been told that I may have a form of OCD (Obsessive-Compulsive Disorder), but I have not been officially diagnosed with the disorder. I find that telling people, even if they don’t understand or think I’m nuts is a very freeing experience. The more I talk about it, the less control the thought has in provoking the panic. I know that I would never harm my son–that’s what makes this so annoying. Why would I have the thought, and then why would I let it scare me so?

I hope this is of some help to anyone. I would love to have feedback of anyone in a similar situation, struggling with similar intrusive scary thoughts. I am happy to share, now knowing that I won’t go to jail b/c I have a disorder, and more importantly that people never act on these intrusive thoughts.

Thank you for allowing me to share, and please don’t judge me–this is not something that I chose to think about and now plagues me as I strive to become well.
Lisa

The content in this post is mirrored from my original OCD site here;

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