“I also saw the awful agonies that Tantalus has to bear. The old man was standing in a pool of water which nearly reached his chin, and his thirst drove him to unceasing efforts; but he could never get a drop to drink. For whenever he stooped in his eagerness to lap the water, it disappeared. The pool was swallowed up, and all he saw at his feet was the dark earth, which some mysterious power had parched. Trees spread their foliage high over the pool and dangle fruits above his head –pear-trees and pomegranates, apple-trees with their glossy burden, sweet figs and luxuriant olives. But whenever the old man tried to grasp them in his hands, the wind would toss them up towards the shadowy clouds.”

[Odysseus. Homer, Odyssey 11.584]

Isolation

Lately, I’ve been thinking a lot about the isolation that can come about from living with OCD.

For many of us with severe or extreme symptoms, we live locked in our own worlds and rarely, if ever, venture out.

I have gone through lengthy periods where I almost never leave my apartment unless absolutely necessary. My primary “social” contacts were through this computer. That is a very lonely existence. Having this computer, and what it could bring me in terms of contact with others, was really a two-edged sword. While it relieved some of the isolation, it also enabled the furthering of my physical isolation by giving me enough that I didn’t have much motivation to seek out “skin on” or 3D contact. There were actually times where I had no physical contact, no matter how slight, with another human being for months at a time. That is an exercise in deprivation I don’t recommend to anyone. After that length of time without any touching, a simple handshake becomes a powerful sensual experience. I think it is true that we actually need physical contact with other people.

It was after just such an experience that I realized that I had to get out and interact with the world no matter how much anxiety that produces. I had stopped living and was reduced to just existing. And that lets the OCD win. I cannot allow that. So out I go. And yes, it produces anxiety – every time. But it is preferable to being that alone.

One of the things I did to make getting out more doable was that I found an activity that was something I once enjoyed. I have discovered I still do. And since it involves other people, it, of course, triggers off my OCD on a regular basis. That’s difficult but it is not the hardest part. For me, the hardest part is my perceived and continuing isolation and feelings of being separate.

I watch the people I am around going about everyday things without thinking. Simple things, like sitting in a chair without checking it out, deciding if it is safe, not having the thought enter their mind. I watch them with their casual touching of one another, apparently without much notice. I watch them walk across a room without being cautious about where they step, not even being concerned. I spend my time hyper alert, always being aware of what every part of my body is touching, of where everything and everyone is and what they have touched. And I am so envious. What it must be like to live that free. And most of them have no idea of what a gift that level of unawareness is. How free they are to not live in this nightmare world that I see all around me. Everything I want is embodied in that freedom. And it is just there, in front of me and infinitely far away. Tantalus in his pool understands. (see the quote above)

There was a time in my life, long ago, when I lived that free. And the constant exposure to what I no longer have produces an ongoing sense of loss, even grief; for all that I have lost and for all that will never be. I am separate, separated from life by irrational fears, a product of a disordered biological process beyond my control. This is what I find the most difficult.

I keep going out there. I have made a new friend or two. And some days, I am less aware than others of this feeling of separation, this isolating process in me. There is improvement; life does seem closer at times. I don’t know if this feeling of isolation will ever really pass. But the alternative, true isolation, and being totally alone is certainly worse. And in reality those other people do not see me as separate though, perhaps, they do see me as a bit idiosyncratic.

So I continue to try and grab as much as I can each day and try not to think about more then that. Some days I can and some days I can’t. And I have bad days and dark nights with depression a close companion. But I have good days too. If all I look at is what I don’t have and will never have then I will not make it. I will give up and that thought frightens me. I don’t want to live the rest of my life alone and the only way to do that is to not isolate and deal with all the fears, feelings and concerns that brings up as they come up. It is work but what is the alternative?

Just some thoughts. Wednesday, May 24, 2000

The content in this post is mirrored from my original OCD site here;

Doubt is thought’s despair; despair is personality’s doubt. . .;
Doubt and despair . . .
belong to completely different spheres;
different sides of the soul are set in motion. . .
Despair is an expression of the total personality,
doubt only of thought.
- Søren Kierkegaard

Doubt as a disorder?

For myself and those millions of others who live with the “Doubting Disease”, as Obsessive-Compulsive Disorder (OCD) is sometimes called the answer is, yes. For us doubt can be pathological.

There is a need for certainty in OCD. Certainty is, of course, elusive. It is in this not knowing that compulsive ritual is born.

The disorder asks, “What if?”. The question comes unbidden. In answering that question we are lost. We are lost in a labyrinth of increasing anxiety unable to break free. Fear, horrific images, vivid terrifying consequences consume us. “What if?” is the obsession.

If only we could know for sure that these terrors will not come to pass. But we can not know. There is something fundamentally wrong with that process in us. The disorder is unable to tolerate uncertainty. In the absence of certainty we seek relief. We seek anything that will stop this searing anxiety. One whose fears are centered around contamination will begin to wash or decontaminate. Another will check to make sure they have done something or not done something and on it goes. Soon the behavior becomes ritualized. It has to be done a certain way and a certain number of times. It evolves becoming more and more complicated until it takes over the persons life.

OCD afflicts 2%-3% of any given population . It does not discriminate, geographically or ethnically. It is found across the whole spectrum of human culture and population. Many of these millions of sufferers do not know what is wrong with them. They do know that something is wrong. They know that these strange demands are irrational but cannot stop. They do not know that they are not alone.

This page is just by one of those people.

If this page helps anyone, either to find help or just to discover they are not alone, then it’s purpose will have been then defined. I am just attempting to carry the message.

The content in this post is mirrored from my original OCD site here;

A man whose mind feels that it is captive would prefer to blind himself to the fact. But if he hates falsehood, he will not do so; and in that case he will have to suffer a lot. He will beat his head against the wall until he faints. He will come to again and look with terror at the wall, until one day he begins afresh to beat his head against it; and once again he will faint. And so on endlessly and without hope.

One day he will wake up on the other side of the wall.
- Simone Weil

About Me

Right off the top let me make clear that I am not a professional in the medical, psychiatric or social work fields. I am not a doctor or therapist. I’m just a guy with OCD (Obsessive-Compulsive Disorder).

I have had OCD for 40 years more or less and was diagnosed (finally) about 10 years ago. Which puts me at being 40 something and lets leave it at that.

That, I suppose, makes me something of an expert at living, or surviving, with OCD. I also know from personal experience a lot about what OCD treatments are and what they are like. I have an intense and up close knowledge of side effects for instance. Believe me, I’ve tried all of the medications, common and uncommon, CBT (Cognitive Behavioral Therapy), talk therapy, you name it, everything except surgery, which I have declined.

My OCD is considered refractory, unamenable to treatment-so far. It’s also considered severe to extreme. I usually score in the low 30′s on the YBOCS (Yale Brown Obsessive Compulsive Scale) which is a tool used to determine if treatment is working-sort of.

This would be the place where I would put some accomplishments and so forth. And while I have attended college for instance, and done well while there, I have never finished. OCD has conspired in part or in whole to take away most of the opportunities I have had in my life. But that story can be found in my other pages

The long term goal of this site is to put a face to OCD, to make it a personal site. There are many good sites on the Web for OCD that contain great information and resources, but not many that try to convey what it is like from a personal point of view.

Ideally, if someone who knows they have a problem stumbles across this site and, in reading, sees something of themselves or identifies with what they see and then seeks help or even learns that they are not alone and that there is help available – that would be what this site is about.

The content in this post is mirrored from my original OCD site here;

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